Monday, January 9, 2012

Just some reminders Zipperheads for Chiari is not a medical site. We do not have doctors on our site to give out medical advice that can hurt any persons medical situation. ( If you do have a medical question or a medical issue please call your doctor or 911) because we are not a medical support group and do NOT have doctors on site we can NOT advise any persons to take medication or medical procedures it is against the law for us to do so because we do not know the person's history and are not medical doctors.

We can tell our story’s help people understand what we know with the understanding that we are not medical staff. This can be hard since we are the expert on the disease of Chiari living with it daily. Sharing your story and what has happened and where you are now can help more then anything else. We can help support and love Chiarians, Zipperheads, family and loved ones on the journey that they go though. We are growing fast and that is amazing. As we grow we need to keep in mind that some are new to Chiari and need our love and support.

 Fear, incorrect information, medical advice, negativity, religion, racism and any other form of hurting anyone in there journey is not allowed on our page if you do so you will be asked to leave and not welcomed back. This is a place for us to talk about what we go through find the positive and move forward even when it is a small step.

As all of us have or are going though the questions of, why, what is this, how did I get it and what do I do about it, we need to remember on easy thing- You are not alone. did that fix it "no" but it helps. Please remember to love all and always be respectful to each other we are a family we love with out judgment.

Chiari is a disease that affects us all in different ways we need to be supportive with love always. If you are unsure of your post please go to our information page and look at the rules. We are here to educate with correct information have links that are from medical professionals and understand that Chiari is evolving in our medical society.

Please just keep in mind that it is hard for all of us, we have good days and bad. When a bad one comes ask for some love- when a good one is with you give the love. We are not alone we are together in this fight with Chiari you are not alone.

Support and love always

Heather-founder of Zipperheads for Chiari.

If you would like to get a hold of me my number is 530-204-3904 I would love to talk to you and support you.

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