My life has never been normal so I don't know what it is like to live in the same place or go to the same school for more then 3 years. My childhood was we will say a big learning experience. I was always different and there was something wrong with me but I thought it could not be fix. Well that is all just how you look at it. I have been very loved by some amazing people and blessed to have some still in my life but my life is not easy, not one day is, not one hour is. I speak the truth when I say I am ok with that. Chiari and my brain aneurism has affected my life and my family’s and friends in a way I never thought, Some went some stayed, most went. I would not change it I would not ask it to go away, it reminds me everyday what I need to be thankful for. What I need to do and that is to share my love and my support. We all have a purpose we are all important and we all need to find what that is. I don't want pity or anyone feeling sorry for me, my family or my daughter I want support and love. I learned a long time ago you can't cheat life there is a plan. I heard the best saying I think I might have ever hard. “Your not the rock your the water that flows between it. Chiari has taught me how to stop and lessen, to release my anger (sometimes I still have issues with that) and most of all I am what I am, I'm Heather first, a mother, a wife, a daughter, a friend and a Chiarian last. I am a very strong person but there comes a time when you need to tell people your here and you need to be held, we are hurting and we feel alone. Even if there is no cure for Chiari there is a better way of life and it starts with how you are going to live your life. I live it one day at a time, maybe tomorrow I wont be in any pain! I usually stay away from my personal beliefs on Zipperheads for Chiari but I thank God everyday for my life and yours. With all my love I GIVE TO YOU.
Heather Graves
founder of Zipperheads for Chiari
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