When Chiari hits your family and friends who does it effect

I was talking to a mother and wife that has been hit with Chiari in there family, she does not have Chiari but lives and breaths it. She often talks about how she does not have it so she does not have a “right” to say she knew what it was like and I disagree. Chiari can effect the whole family as a black cloud that consumes each person close to the Chiarian. As most of us know Chiari can not be seen as a rash or the mumps so it can be hard to understand what it is or how it effect ones life but it can effect all the lives involved around the Chiarian. We do not have Cancer or any illness that most of the population is aware or educated in so it makes it so hard to explain and on top of that our emotions are on high alert because we are scared. Even the family and friends with out Chiari are scared and stressed but they have something we do not (as a Chiarian) the understanding of what Chiari does to our bodies and our mind, our everyday ability of just being and enjoying today.

As a mother of a Chiarian and being a Chiarian I can see both sides and neither are better or stress free. When the black Chiari cloud approaches your house everyone is effected and everyone is scared.

So how do we all deal and live with this Chiari- Please always talk about the elephant in the room. Do not give it the power of not talking and educating everyone about Chiari or how you may feel about what Chiari has made you feel. My advice on education is always remembering what you read on the web my not be the whole story and everyone is different when Chiari is concerned so the symptoms my not be the same but the problem is. We all have some type of malformation of the brain and it effects our body. The most important thing is we all need support and love. We don't want to be alone and we all want just to be heard. That includes the people who do not have Chiari but are there to support us- the parents and siblings, the other half’s and the friends the family who are there for us. We need them as much as they need us. They may not always respond the correct way and sometimes we may not but the best way to work is together.

 Zipperheads for Chiari is for all who is effected by Chiari so that everyone can get support and love. It did not just effect me it effected everyone around me. It changed everyone’s life in my house and in my circle of friends and family. So as I said to the mother who has a child with Chiari and a husband with Chiari, who eats and breaths Chiari like most of us do. You are not alone we are all here for you too, you are as important as your child and husband because you are the back bone of the family and they need you. We need them, we love them and we always want to say thank you for being there and holding us when we are sick and for loving us even when they might not have understood. I made sure my cloud of Chiari turned purple not black what about you?

Note: this is just my opinion. I am not a doctor nor do I have any medical staff of Zipperheads for Chiari's site. We are here to love with support that is what we try and do if you have a medical problem we recommend you to call 911 or go to your ER or call your doctor thank you with love and support.