Zipperheads for Chiari

   Life sure does take you by surprise. Sometimes it’s a good surprise and sometimes it’s a surprise you don’t understand how to over come or why it happened. Chiari is just one of the surprises in life we sure were not expecting that keeps on giving good surprises and not so good ones
 
   I realized this week that I was hiding a lot from my friends. I change depending on who I’m talking too, why: well because I am so afraid of losing more of them. We loss friends when we get diagnosed and then we loss more after surgery and then we loss more….. It was not making since to me, I could not understand it. I thought it was all me, until I started talking to my Zipperhead family and this was a problem for them too. I snapped, broke a few days ago it just broke my heart. This may be unfair for me but I could not handle most of us going through this also. I couldn’t understand why our loved ones run, turn on us or just stop talking to us all because we are sick! I would never do that.. It was killing me I didn’t understand (I hate not understanding). I have a few friends now that are really there for me. Then I realized that yes it hurts and it’s mean, we would never do this to anyone but If the “friends’ I had don’t want to be around or can’t, then that’s ok. I don’t want them, I want really people in my life who care. I have to say this has been my hardest battle, my biggest surprise.
 
   In the end the ones around you that are supportive and positive are the ones that matter. The friends and family you don’t have to change around, they are the ones that we need… It never makes it easier or less hurtful but we have to push the negative away to make room for the positive. This is just one of the battles we have to overcome. It’s time to make sure we have positive people in our life and if they are not they need to go.. The hurt turns into pain and then we suffer from it physically. We all want to be loved and be excepted and we never asked to have Chiari. We need to stand stronger together and support each other. Push away the negative and receive with love.

   This is one of my surprises and I wanted to share it with you because we are never alone. I love all of you with positive support, your all my good surprise from Chiari!!!