Today lets talk about something “no" one likes to talk about or go through.. Bathroom issues!

   This is a topic I have wanted to talk about for a while but is not the most comfortable or attractive topic..

   With Chiari we all go through many different problems for me one was constipation. I’ve always battled with it know matter what I ate or did there it was. The wonderful and fantastic Chiari head pain is worse as I bare down for the one thing in the world I hated in my life, going to the bathroom!!! This started as a child and continued through my adult life. It was to embarrassing to talk about so I kept it a secret for years. Nothing worked, I tried laxatives of every sort, fruit veggies, a lot of water and it even took me to a place where I didn’t want to eat because of what would come next. When I was diagnosed I was told by my NS that this was a side effect of Chiari. I was so relieved and so worried how in the world can this one thing we all do get fixed and not be so painful.. I was told to try Milk of Magnesia and that was and is the only thing that helps me ( that and a lot of water). But because of all the years of this issues it opened the gates for another issue hemorrhoids…..

Yeahhhhhhhh……

   Unfortunately for us that have constipation issues this is something that is not avoidable. So as I have lived for so long with the constipation I also suffered for years with the wonderful and painful issue of hemorrhoids (side note they are not my friends). As the same as the constipation issues I have tried everything and nothing worked.. They were always there even when I did not push they were there hang out havin there own party in a place I wanted them not to be!!!! A little back ground of me I am not one to talk about these things but when you are sick is seems that it effects so much of the body sometimes it is hard to handle. As we talk about on this site you are never alone and there are always people out there suffering along with you.

   I have come to know my body and listen to it through my battle with Chiari and as my doctors would never be willing to say this, it seems I get so effected by stress that even, yes I’ll say it my bum is effected. I recently went to the doctors not willing to deal with my issue of my bum and of course found out there are more then one type of hemorrhoid. I have what are called Thrombossed hemorrhoids that is a clotted vein. Sense I am a complicated person medically they have to do surgery and I have a number of these hemorrhoids. The reason why I am telling you all this is because we are very complicated medically and we need to make sure we are on top of every thing. We can not let anything go by the way side. We have to take care of ourselves and listen to our bodies even when it is something we don’t want to talk about! Chiari is not just something that effects the head or neck. It effects are nerves and can effect other parts of our body. We need to make sure we understand bodies and understand that it may happen to one person but not the other but we can not afford to ignore anything..

   Through this I have once again had a wake up call that I can not take on the stress I once could. I need to take care of me, myself first. It is hard and some may not understand and that is ok.. But we have to put our self’s first. Pushing back the stress and negativity and releasing it with love.. I know I am not alone in this fight and it makes it easier just knowing we go through thing together. Please take care of your self. As always I send my love and support to all of you.

Note; this is just one Chiarians story this is not a medical site, if you are worried about something please call your doctor.