It never gets easier, this Chiari we have

   I woke up yesterday and wanted to write about something important and I couldn’t. This is a frequent problem I have. I often wonder if my mind takes vacations with out telling me! Then I wake up the next day and “OH” what my minds back!!! So you all get it today..
  
   I have to push myself to stay positive, to not stay in bed all day long. There are times I make plans and wonder what I’m doing because I am not the same person I was. I can’t keep up with that person any more! I often find the person I fight with the most is me! I miss it, all of it, the crazy fun, the concerts all of it. But as I write that sentence I remember how scared I was. The pain was running my life and I ran with it. I take it back I miss the idea of that person I don’t miss her!

   I would never change my diagnoses. Before, my life was hallow but not now. I enjoy everything more. I appreciate people more. I watch my children become adults and find myself wanting to freeze time! I listen and want to help even more then I did before. We all face the fear of being sick everyday, the pain, the sadness and the loneliness. We can change that! It’s not easy but it is worth it! Once you force your self to make the step of being positive and leaving the past in the past, and everyday making that step with a positive outlook everything looks different. It does not take away Chiari but it helps with the way we cope with it. It helps with dealing with the doctors and the decisions we have to make. We have the right to educate ourselves and learn what is right for each one of us! When you step back and take some of the fear away it is easer to see the right decision for yourself.

   I started this group not knowing what to expect but knowing it was needed. I started it because I felt alone and lost. I am so proud of our Zipperhead family. The steps we make everyday to become stronger and more positive. The support we give freely with love makes it all worth it to me. I would never change it and thank you all for supporting me, you have helped me in my journey of healing. With all my love and support I give to you!


Note: Zipperheads for Chiari is not a doctor site. I am just one Chiarian wanting to share with love and support. At anytime if you have medical questions please call your doctor. If you have thoughts of hurting your self or anyone else I recommend you call 911.