The things we read on the web…..

It is always good to educate your self specially when you are diagnosed with a rare brain disease. We all seem to want to find the one good story or article on the web and for that we continue to not rest until the search is complete. Unfortunately we also are so scared we go into what I call a scare frenzy or scaring your self silly. Please see below.

When I was diagnosed I wanted to know everything, I research everything and tried to understand all of what Chiari was and what came with it. It is a very scary time when you find out you have such a rare disease and such a confusing one. It is so hard to try and process all of this in your mind specially when it is all in your mind!!!!

Stress can effects us in many different ways. Emotional and physical we need to find a way that best helps us remove some of the stress in our life. Having Chiari in it self is stressful and can be very overwhelming to deal with it. A good support system and people around you in this time of need is essential. This can help more then the Chiarian it can also help the loved ones by understanding they are doing what is needed and that is just being there….

There is a lot of information on the web and lot that is not. Unfortunately we don’t always find the correct information and this spins us into a panic of fear. We need to always remember that this disease is symptomatic and that everyone’s body handles it different. We may all have the same diagnosis but not the same issues. Please keep in the back of your head that information you share is your opinion and that we are not NS’s or in the medical field yes we are a part of it and can help some but every case is different. The information I post if it is medical I have help from my NS who has Chiari.. It is never Zipperheads for Chiari’s focus or intention to report false information. Please make sure when helping and supporting others you too are getting the correct information. Wrong information can hurt a persons life very much.

We are here to love and support all with only positive motivation.